The Zolgensma gene therapy is the most expensive medicine in the world and it costs around ₹15.24 crores (approx).
Her parents weren’t able to afford such an expensive medicine but thankfully, through crowd funding, they managed to raise ₹16 crores.
As soon as the injection reached Mumbai on 26th February, it was immediately administered to Teera in PD Hinduja hospital.
Teera suffers from Type I Spinal muscular atrophy. She requires a ventilator at home and a feeding tube. She is undergoing gene therapy and apparently, one injection of the medicine is enough to correct the genetic defect.
For those who don’t know, SMA is a genetic disorder in which one defective gene causes muscles weakness and degenerates its normal functions. This rare disorder is found in one of every 10,000 babies with most unable to survive beyond a few years.
People on social media are also praying for her good health.
We pray that the medicine works and she gets to live a healthy life. You can follow her on Instagram.