WARNING - The video in this post contains graphic visuals of a rare genetic skin condition.
The story of this boy is beyond my writing ability. I'll just go with what the video description says -
14-year-old Jonathan Pitre is an avid hockey fan who suffers from Epidermolysis Bullosa, one of the most painful conditions known to modern medicine. But his courage and determination to live is unlike anything in sports. To learn more, or to donate to families affected by EB, go to http://debracanada.org/
Here's Jonathan's story -